Dystonia

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Thu, 12/02/2009 - 09:38
magzc
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Joined: 12/02/2009
hi i would like to know more about peaple with dystonia, i wos told i had this condition in october never heard of this , alot of peaple havent, i feel really alone it has changed my live alot ,i wos just told i had this condition an i had to go for botox injection 5 months later,had no support from anywere even wen i went to my doctor she even asked me wot it was..just like to know of anyone out there that also has this condition thank you margaret
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Mon, 03/05/2010 - 22:58
#1
Jaxellie
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Joined: 01/09/2009
Dystonia
Hi Margaret Sorry to hear your news but you are not alone. My son has dystonia too in his eyes and he also has to go for botox injections every 3 months. This is such a painful desease for you. I don't have your desease but I have rheumatoid and osteo arthritis so I know what pain is like so if you need to talk let me know. Jackie
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